This post is sponsored by Children’s Mercy Kansas City.
When Jordan, a mother of three from Garnett, Kan., learned her unborn daughter Farrah had a large mediastinal teratoma—a tumor in the chest—she faced a daunting journey. This rare condition posed a significant threat to Farrah’s ability to breathe after birth. Seeking specialized care, Jordan turned to the Elizabeth J. Ferrell Fetal Health Center at Children’s Mercy Kansas City.
Upon arrival, during a fetal MRI, signs indicated Jordan was entering labor. Inna Lobeck, MD, FACS, FAAP, Surgical Director of the Fetal Health Center, noted the urgency: “I’m so glad she came when she did.” The medical team quickly determined that an Ex Utero Intrapartum Treatment (EXIT) procedure was necessary. This complex operation involves partially delivering the baby via cesarean section while keeping the infant connected to the placenta, allowing surgeons to secure the airway before complete delivery.
Michael Puricelli, MD, Medical Director of the Comprehensive Otology and Hearing Program,
emphasized the critical nature of timing: “Whenever we have airway issues, seconds and
minutes matter.” Executing the EXIT procedure required a coordinated effort of over 40
specialists, including experts in fetal surgery, neonatology, cardiology and otolaryngology.
Farrah’s successful surgery was followed by intensive care in both the Neonatal and Pediatric Intensive Care Units. Jordan and her family benefited from the support of the Ronald McDonald House, providing them with a nearby place to stay during Farrah’s recovery. As a nurse, Jordan was deeply appreciative of the comprehensive and compassionate care provided by the Children’s Mercy team.
Today, Farrah is thriving, a testament to the advanced medical intervention and the dedicated professionals at Children’s Mercy who gave her the best possible start in life.
Click here for more details and to watch a video about Farrah’s journey.
